​It’s challenging for any parent to seek help for a child with special needs. It was even harder for Sandra, whose deep distrust of programs for kids with disabilities went back decades.

When Sandra was a child in a Seattle special needs program, she felt marginalized both for her cognitive difficulties and for being Black. Teachers would speak too quickly or use terms she did not know, making her feel like her understanding didn’t matter to them as much as that of her white classmates.

When Sandra had her first child, the cycle continued: her daughter was also placed in special education and experienced the same frustrations.
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By the time Sandra recognized that Destiny, the granddaughter she was raising, needed support with her cognition and communication, she was hesitant to once again put her trust in a system that had let her and her family down—especially as a single parent with a low income who had already raised multiple children. But she overcame her initial fears so that Destiny, who was born drug-exposed, could begin Early Supports (ES) therapy with Northwest Center Kids.

​We may have to stay socially distanced, but Northwest Center services can’t stop—kids with disabilities still need therapy to reach their milestones, preschoolers need interaction with classmates and teachers, adults with disabilities need to keep their work skills sharp, and the businesses we partner with need essential services. Here are some ways the Northwest Center community has been rising to the challenge of COVID-19.

The moment the family walked through their front door, Northwest Center was there to help: the family signed up for Hospital-to-Home, Northwest Center’s Early Intervention program that supports families when a baby comes home from a long hospital stay.

“Immediately upon leaving the hospital, we started doing motor and feeding therapy with our speech-language pathologist Natalie Miller,” says Jackson’s dad Nathan. (Miller, who is also a Hospital-to-Home Clinical Supervisor, remains Jackson’s therapist to this day.)

“It would have been unbelievably difficult to not have that support,” Kamille says. “It’s so overwhelming to be hooking your child up to a machine to be fed. It was really important to have someone dedicated to infant feeding. Natalie had worked with kids with tubes, she'd done swallow studies before. It was not her first rodeo and it was definitely ours.”

“Without that support, I think we would have clogged up our doctor’s phone lines,” Nathan says. “Or we might have pushed Jackson a little bit too hard on trying oral feeding if we hadn't had experts helping us understand his limitations.”

“Your first year feeding and taking care of a child is vital to their wellbeing for the rest of their life,” Kamille says. “The most important part of our day was getting Jackson fed. Natalie would talk to us, give a second opinion of ‘That’s normal or not normal’ or, ‘Yes, you should talk to a doctor about that’ or, ‘Here’s some referrals and resources; let me connect you with this person that might give you some more guidance.’ It was a support system.”

Part of the Family
Jackson, who turns 3 in November, has since reached some major milestones.

“We’ve been with Early Intervention services from the get-go. On top of that, Jackson started going to Northwest Center Kids Early Learning at around 6 months old,” Nathan says. “We knew we couldn’t go to just any daycare because of Jackson’s feeding tube.”

​At just four months old, Noemie was having trouble getting enough nutrition. Her diagnosis was complex: tongue-tie (ankyloglossia), a condition that restricts the tongue's range of motion; acid reflux; food allergies; and sensory processing disorder.
 
Noemie’s pediatrician referred her to a special clinic for children who have trouble getting enough nutrition. As the months passed, she saw other specialists in gastroenterology and nutrition, and began outpatient feeding therapy. And yet, Noemie made little progress.
 
Finally, the pediatrician referred Noemie’s family to Northwest Center Early Intervention’s feeding therapy program, and they began working with occupational therapist Molly Nolan-Jones. The in-home visits were valuable, but after a few months, Nolan-Jones felt that Noemie’s diagnosis was not complete.
 
"At that point, Molly told us what turned out to be some of the most important words: ‘I feel like something else is wrong; you need to take her back to the gastroenterologist,” says Noemie’s mom Nichole.
 
“Molly became more than a feeding therapist,” Nichole continues. “She became a family advocate. She spoke with doctors on our family's behalf, and she was instrumental in helping the doctors find a proper diagnosis: eosinophilic gastrointestinal disease.”
 
Eosinophilic gastrointestinal disease (EGID) makes it painful and difficult to swallow and digest food. Because Noemie’s EGID diagnosis was delayed, she had developed a pediatric feeding disorder. So Nolan-Jones continued to work with the family.
 
“I provided education about how to present food, how to engage in sensory play throughout her day, sensory approaches to food, and mealtime routines at their home,” says Nolan-Jones.
 
When Noemie turned 2, Early Intervention transitioned her occupational therapy services from her home to the Early Learning classrooms at Northwest Center Kids at Greenwood.
 
"Noemie, her mom, and I would join the classroom at lunchtime,” says Nolan-Jones. “Our goal was for Noemie to spend time around other kids who were eating and enjoying food. This was motivating for Noemie, and she would eat more food during these meals.”
 
This past fall, Noemie officially transitioned to Early Learning as a student.
 
“Words can’t even explain how thankful I am to Molly and everyone at Northwest Center,” Nichole says. “It made a big difference in Noemie’s life and saved her from further complications. I couldn’t be more grateful.”
 
Learn about EGID at Apfed (American Partnership for Eosinophilic Disorders). Visit Northwest Center Early Intervention to learn more about services for children from birth to age 3.

Kam grabs a slice of “watermelon” from the play food on his family’s coffee table. He pretends to eat it, then offers some to Ricky, his dad.
 
It’s more than a happy family moment, says Susannah Major, a Speech Language Pathologist with Northwest Center Kids. “This is huge,” she enthuses. “Pretend play is such a prerequisite for language.”

When Tiago and Aviana were born two months prematurely, doctors told their parents that they would need to adjust expectations for the twins’ development. Developmental milestones including walking and speaking would likely develop on a different timeline than that of full term babies. Sitting for the average baby is usually around six to nine months. For Tiago and Aviana, it was much later.

By Katia, Northwest Center Mom

Northwest Center Early intervention has helped me understand Alex. Everybody is so on top of things, helping me and helping Alex learn to eat. Before, I would chase after him if he left the table. Now I talk to him to engage him at the table so that he stays and eats more. Early Intervention has made changes happen.

Northwest Center is different from other programs I work with because there are several resources in your network like a nutritionist and feeding team, so I don’t have to wait for referrals to different places. We have meetings with his childcare, Early Head Start, Alex’s doctor and his nutritionist, which means that we are all on the same page, so there is connection and support. We are all trying to find a way together for Alex to work on the things that are hard for him right now.

Northwest Center is a 501(c)(3) Nonprofit Organization. We envision a day when all people have the same opportunity to learn, work and enjoy a fulfilling life. From birth to retirement, we support people with disabilities.
This story was originally published as part of Northwest Center's 50th anniversary project: 50 Stories Worth Sharing

When they learned their daughter Helena would be born with Down syndrome, Lisa and Joe Wasikowski knew they’d face some difficult choices. The one easy choice was to work with Northwest Center Early Intervention.

“Helena was in the NICU, and a social worker handed me a business card with Northwest Center info on it,” Lisa says. “By the time Helena came home from the hospital, we'd already met with our new team in our home and had formed a plan. She started therapy at three weeks old.”