From Heart Surgery to Hospital-to-Home Therapy, Early Supports to Early Learning, Northwest Center Supports Jackson Every Step of the Way
The moment the family walked through their front door, Northwest Center was there to help: the family signed up for Hospital-to-Home, Northwest Center’s Early Supports for Infants and Toddlers (ESIT) program that supports families when a baby comes home from a long hospital stay.
“Immediately upon leaving the hospital, we started doing motor and feeding therapy with our speech-language pathologist Natalie Miller,” says Jackson’s dad Nathan. (Miller, who is also a Hospital-to-Home Clinical Supervisor, remains Jackson’s therapist to this day.)
“It would have been unbelievably difficult to not have that support,” Kamille says. “It’s so overwhelming to be hooking your child up to a machine to be fed. It was really important to have someone dedicated to infant feeding. Natalie had worked with kids with tubes, she'd done swallow studies before. It was not her first rodeo and it was definitely ours.”
“Without that support, I think we would have clogged up our doctor’s phone lines,” Nathan says. “Or we might have pushed Jackson a little bit too hard on trying oral feeding if we hadn't had experts helping us understand his limitations.”
“Your first year feeding and taking care of a child is vital to their wellbeing for the rest of their life,” Kamille says. “The most important part of our day was getting Jackson fed. Natalie would talk to us, give a second opinion of ‘That’s normal or not normal’ or, ‘Yes, you should talk to a doctor about that’ or, ‘Here’s some referrals and resources; let me connect you with this person that might give you some more guidance.’ It was a support system.”
Part of the Family
Jackson, who turns 3 in November, has since reached some major milestones.
“We’ve been with Early Supports services from the get-go. On top of that, Jackson started going to Northwest Center Kids Early Learning at around 6 months old,” Nathan says. “We knew we couldn’t go to just any daycare because of Jackson’s feeding tube.”
“At Chinook, they support his Early Supports therapy,” Nathan says. “They’ve always really supported any changes we needed to make. They never complained, always asked if there was more they could be doing.”
Still Connected, Still Thriving
The family is grateful for the consistent support from Early Supports and Early Learning, especially their long relationship with their speech-language pathologist.
“I consider Natalie a wonderful resource and a close friend,” says Kamille. “I think of her as somebody who I trust with my child's care. Northwest Center was able to facilitate me having support and Nathan having support, and his grandparents having support, by coming into our homes, and that was key to his success.”
Because of COVID-19, in-home visits are suspended for now, but Jackson continues to expand his vocabulary thanks to weekly telehealth therapy. These days, he is practicing saying words and phrases typical for a two-year-old like "I want juice" and "I love you."
“My hopes for Jackson’s future are just like any other parent,” Kamille says.
“I want him to have a normal childhood with normal ups and downs,” says Nathan.
“I want him to be loved by everyone, because he is absolutely worthy of it, as any child is,” says Kamille. “It’s so important to us that Northwest Center’s work continues—for Jackson to have good care and other kids to have an inclusive place to go.”
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